Friday, March 18, 2016

One month down

Hey! First off, I feel really good this week!  Still get tired but not near as bad as the last few weeks! I'm hoping my week off is always this good! Unfortunately this week is going by way too fast! Ticks me off to think that this Sunday I start over again! And to top it off, my lab work came back good (which is good), this means my body is handling the treatment well and my next round of chemo won't be delayed but......this also means they are going to up my does of chemo......mixed feelings about that. So I suppose it's possible that this next month I could be more tired yet....?  ugh...... Hopefully the nausea continues to stay away!

I made a crap ton of phone calls this am figuring out insurance stuff, talking to Cleveland, calling my specialty pharmacy to make sure my meds were on the way....... feels like such a waste of time and so annoying.  But... I did find out my next appointment is May 16.  They really don't expect to see any change yet.  They are just hoping for no more growth.  At this point I'm not concerned about it at all.

I'm doing well with the oils and such but failing miserable with my diet..... I need to come up with a plan. I do so much better with a plan.  I believe Mike and I are going to start something pretty stinkin strict very soon. Not excited at all but feeling ready to make the commitment.  It's a health thing for us not a "get skinny" thing. I'd be lying if I said that wouldn't be an awesome bonus! Like really awesome. We had the great privilege of taking some visiting Pastors (Pasors IV and Bene from Epic Church) to the airport and they highly recommended this diet to us.  I am getting out and walking as often as I can. It definitely is a mood lifter for me! Gets my blood flowing and love the fresh air!

Overall I feel like we are all doing pretty good.  We just keep it "light" especially with Luke.  This week one day we were on our way to school when I realized he didn't have a jacket or anything on! He definitely needed one on! So we laughed and I kept saying you look like you don't have a mother! He giggled :)  When he got out of the car I said have a good day you little boy who doesn't have a mom, I said just tell them your mom is on chemo and is missing some of her brain. We just have as much fun with is as we can! I really do believe that he is doing so good!

"They have no fear of bad news; their hearts are steadfast, TRUSTING in the Lord."  Psalm 112:7

Love,
Jess



Thursday, March 10, 2016

Quick update

So I haven't updated in awhile just because every time I think I'm going to do it I either fall asleep or just plain don't get to it. Obviously being tired is my biggest complaint.  Most of the other side affects are minimal and have pretty much subsided at this point. Last night I had a hard time working and then again today.  I don't know what to make of it.....is the chemo starting to build up in my body,  did I do too much, or am I just that tired.  I don't know.  We figured this month would determine a lot about how my body was going to handle it.  So we have another week plus but right now I'm the most exhausted I've been since I started this treatment.  Fortunately Luke's soccer was canceled for tonight and I don't have too much to do tomorrow so hopefully I'll get the rest my body wants. Pretty sure I could go to bed right now and it's not even 6!

We have been SO blessed by everyone! Oh my goodness.....I don't even know how to thank everyone!  The meals are sooooo awesome and even though I feel silly about it, it really is awesome! Luke especially loves the meals! We get excited for Mondays and Fridays! Even though I am capable of making dinner it's so awesome to come home to a meal 2x a week that Mike nor I had to make!  Once again, I'm just tired. I love this community and the way everyone is ready and willing to do whatever they can! We are just so blessed.

I go for my first round of blood work tomorrow to see how my levels are and if I can continue on this treatment or if I need to take more than a week off next week or if my levels are good they are going to up my dosage.  Sunday will be the start of my week off!  Hallelujah! I'm soooo very ready!

That's all for now....Thanks for the way you all have been loving on us!  You all know how to make someone feel special!

Love,
Jess